centre benevole

Holly Smith, LJI Journalist

NEW CARLISLE – Alzheimer’s disease is more than just statistics, it’s an emotional journey that profoundly impacts many families. According to Statistics Canada, approximately 750,000 Canadians are living with the disease, with 414 new cases diagnosed daily. Behind every number is a story of love, heartache, and strength. Amy Day’s is one such story. The young woman is bravely sharing her grandmother’s journey with Alzheimer’s on social media (Tiktok), vividly painting a picture of the pain and beauty that come with an Alzheimer’s diagnosis. 

“When I was younger, I would sleep with my Nanny pretty much every night. My first memory of her would have to be her playing with my hair as I went to sleep while singing, You Are My Sunshine. We were each other’s sunshine and still are. We shared so many wonderful memories, from playing sports outside in the summer to fishing at Lac Duval and walking the beach to look for cool rocks. The list goes on. There’s nothing my Grandmother didn’t do for me,” she adds. 

However, in 2020, Amy noticed subtle changes in her grandmother. “I started noticing that she would repeat herself a lot. I was living in the city at the time, but would talk to her on the phone 99 times a day. She started to tell me the same stories over and over, and I’d have to say, ‘Nanny, you just told me that, remember?’ I think that’s when she realized it too. On my first vacation home after that, we went down to the beach for a walk. She told me the same story within a 20-minute span. I said, ‘Nanny, I really think something is wrong.’ She looked at me with nothing but heartbreak in her eyes and said, ‘I know,’ and we both cried.” 

The diagnosis brought waves of emotion. “It was hard. There was also a lot of guilt,” says Amy, who wondered if they should have brought her Nanny to the doctor sooner. During that period the family went through many emotions. “I was always so afraid to lose my grandmother; I just never thought I’d have to lose her in this way,” says Amy. 

Upon her grandmother’s diagnosis, the family immediately educated themselves on the disease. Amy’s family, including her grandfather and Aunt Selena, have been essential in caregiving. “My grandfather does everything now, along with Aunt Selena and myself. We have to make sacrifices, but it’s our turn to take care of her, just as she did for us our whole lives. My grandmother’s family doctor has been amazing in helping us through this process. She checks in on Nanny regularly and gives us the tools necessary to take care of her. At this point, we are her resources, and we’re doing the best we can,” states Amy. 

For families like Amy’s on the coast, the Société Alzheimer Gaspésie–Îles-de-la-Madeleine (SAGIM) offers a lifeline. This organization provides tailored services to help those living with Alzheimer’s and their caregivers. Programs include personalized counselling, support groups, and workshops designed to manage the emotional and physical toll of caregiving. 

Other vital resources include the Centre d’action bénévole (CAB), which provides services such as transportation to medical appointments, friendly visits, and meal deliveries. The Gaspé Peninsula Integrated Health and Social Services Centre (CISSS) also plays a significant role with its memory clinics. The Clinic provides specialized assessment and treatment for individuals 65+ and younger adults with cognitive disorders, focusing on maintaining autonomy and optimal functioning at home for as long as possible. To access memory clinic services, a doctor’s referral must be sent to the clinic’s liaison nurse. If you don’t have a family doctor, you can request assistance through the Chandler CLSC home care window. The clinical nurse will review your request and inform you of your eligibility. Multi-Services Corporation d’Aide is another essential resource in the region, committed to supporting the elderly and those losing their autonomy be helping them maintain their independence within their natural living environment. 

Despite the resources available, the personal impact of the disease is undeniable. Amy reflects on the changes in her relationship with her grandmother: “My grandmother raised me; she’s like my mother. She was my shoulder to cry on, the person I’d call when I needed someone. She was my rock. Not having that anymore has been so hard. She remembers my name sometimes, especially when I remind her, ‘Remember the little girl you raised, Nanny?’ and she’ll say, ‘Yes, Amy, she’s a good girl.’” 

Amy also cherishes the joyful moments that remain. “She has always had a great sense of humour, even now while fighting Alzheimer’s. She’s always cracking little jokes, singing, and dancing. I see her pretty much every day. Sometimes, she’ll ask me to lay in bed with her, and I do. I’ll sing to her, and she’ll fall right asleep. The roles have reversed, but the love is still there.” 

Amy offers a final piece of heartfelt advice to others in similar situations: “Please be patient and try your best to stay strong for them! When your loved one with Alzheimer’s repeats themselves, go with it. Listen to them. Even if it’s the same story over and over. Remember that love, it never dies. The feeling will always remain. When my Nanny sees me, even though she may not remember me, I know she remembers the love. I know she can feel it. Be with them until the very end.”